Back in May I was interviewed by a reporter from the BBC. He was putting together an article about a fellow patient at The Hallwang Clinic who has had to sell everything she has to fund her treatment and found my blog so asked if he could include me in the article.
It was aired in June 2017 but I’ve only just managed to get the recording from my Sky HD box to my PC in a format that I can get online (try it, its not as easy as it sounds, particularly with an old DVD recorder!).
Anyway here it is:
There are some interesting points made in the article and a couple of things need clarifying;
- Lisa confirms how stressful it is knowing that there is something that will cure you but only if you can afford it
- NHS England respond saying that people can apply for Individual funding; something two NHS consultants have told me is a waste of time
- The costs are the costs at The Hallwang Clinic, it would cost far less for the NHS to provide this treatment
- My oncologist hasn’t refused to submit an Individual Funding Request, he’s just not been clear about what to request, so hasn’t done it.
I was also interviewed yesterday by journalists from That’s York who had found my Gofundme page and thought it was a good local interest story. They are a new station with initial funding from The BBC, they broadcast on Freeview channel 8 and hopefully their piece about me will go out on Monday 4th September at 6pm and be repeated through the week, it will also be on their web site and I’ll probably put it on here.
Look Mum, I’m on the Telly! Hopefully I don’t sound too much of a dolt.